I have been a hibernating turtle for too long. Now it is late spring, and it is time to come out of hibernation. It is time to look around and to speak out from time to time on a variety of topics.
No schedule, and some days post several times. I’ll go forth, like the painted turtle. Slowly and carefully. But I will stick my neck out from time to time.
Me – coming out of hibernation
Hi I recently read on one of your posts that you have a daughter who was diagnosed with hydro in utero. I am 20 weeks and was diagnosed yesterday with very little info. Termination was mentioned as was mental disabilities. I would love to hear your daughters story to see if it can shed light on our scary situation. Thank you
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Anyone who can shed light is appreciated
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I think you have me confused with another blogger. None of my children were diagnosed with hydrocephalus in utero. I was (now retired) a nurse-midwife, and may have replied to a question about this condition. From a PhD nurses’ point of view, however, I have to encourage you to talk in detail with your doctor. Yes, unfortunately, termination is always an option. Mental disabilities can be a problem, too. However, there are cases in which the baby is born, treated (or even treated in utero), and goes on to lead a normal and productive life. These cases are rare, among the rare condition of hydrocephalus, but they do occur. You can find more information by searching the term – hydrocephalus – on the web. This is a situation that requires conversation with your physician, your significant other, and your pastor or other spiritual leader before making a decision. The decision has to be yours and your husband (or significant other), not anyone else’s.
My daughter, in her second pregnancy had a Triple-test that indicated possible Down Syndrome. She elected to not terminate her pregnancy, as we are Orthodox Christians, and as she researched Down Syndrome and was prepared to deal with the complications. She did not need to, however, as her child was born perfectly healthy and without Down Syndrome. This is not the same as your diagnosis. Your diagnosis is not “possible” hydrocephalus, but IS hydrocephalus. And that is where you start in your research.
I will keep you in my thoughts and prayers, Jennifer.
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